Today 5G pupil Maddie used just under 20 mins of her lunch hour to run 2.6km for the Charity “HopeforHasti” and donated £26 of her own money.
Maddie did this as part of the two point six challenge that was put together in an effort to save UK charities that have lost a predicted £4 billion as a result of COVID-19. The challenge started on Sunday April 26th, the day the London Marathon should have taken place, and the idea is that as many people as possible get involved with a personal challenge around the numbers 2.6 or 26 for a selected charity.
Maddie chose HopeforHasti to help a lovely 8 year old girl who has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). CdLS is characterised by reduced growth, global developmental delay, feeding problems, speech and language difficulties hearing problems and, in many cases, limb abnormalities. It is rare for children with CdLS to become adults who live independent lives, often needing round the clock care for their entire lives.
Hasti’s parents are committed to developing a gene therapy so that children with CdLS, both now and in the future, can enjoy healthier lives. All donations received are going towards that goal!